Journal of Public Health Management and Practice
November 2004 Supplement
Special Issue Focus: Integrating Child Health Information Systems
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Cover Page, Editorial Board, and Table of Contents
Editorial: Integrating Child Health Information Systems,
Alan R. Hinman, Kristin N. Saarlas, and Michele A. Lloyd-Puryear
This editorial highlights the supplement as an opportunity to summarize the unique informational needs for children’s health care and some of the recent progress toward developing integrated child health information systems at the state and local level.
All Kids Count 1991-2004: Developing Information Systems to Improve Child Health and the Delivery of Immunizations and Preventive Services,
Kristin N. Saarlas, Alan R. Hinman, David A. Ross, William C. Watson, Jr., Ellen L. Wild, Terry M. Hastings, and
Patricia A. Richmond
This article describes the lessons learned from this 13-year program that are applicable to other public health and medical care initiatives.
Evolution of a Child Health Profile Initiative,
Deborah S. Linzer, Michele A. Lloyd-Puryear, Marie Mann, and Michael D. Kogan
This article details a qualitative assessment of state programs that were funded to develop plans for the integration of newborn screening and genetic services systems with other maternal and child health systems.
Family Perspectives on Integrated Child Health Information Systems,
Terry Marie Hastings
In this article, parents—especially those who have children with special needs— are interviewed about their perspectives on integrated child health information systems, and common themes are discussed.
A Vision for Child Health Information Systems: Developing Child Health Information Systems to Meet Medical Care and Public Health Needs.
Integration of Child Health Information Systems: Current State and Local Health Department Efforts,
S. Nicole Fehrenbach, Janet C. R. Kelly, and Christie Vu
Eighteen health departments were interviewed in an exploratory research study, described in this article, to gather information on their current activities regarding integrating child health information systems.
Key Elements for Successful Integrated Health Information Systems: Lessons Learned from the States,
Ellen L. Wild, Terry M. Hastings, Ruth Gubernick, David A. Ross, and S. Nicole Fehrenbach
This article describes the key elements that are considered critical to the success of an information systems integration project, their best practices as implemented by states, and the lessons learned from site visits.
Assessing Organizational Readiness and Capacity for Developing an Integrated Child Health Information System,
Ellen L. Wild and S. Nicole Fehrenbach
The Tool for Assessment and Planning, which assists public health teams in designing child health information integration projects by assessing their organizational readiness and capacity, is presented in this article.
Principles and Core Functions of Integrated Child Health Information Systems,
Alan R. Hinman, Delton Atkinson, Tonya Norvell Diehn, John Eichwald, Jennifer Heberer, Therese Hoyle, Pam King, Robert E. Kossack, Donna C. Williams, and Amy Zimmerman
This article discusses a set of 19 principles, 22 core functions, and 8 desirable functions for integrated child health information systems that were proposed for 4 program areas: newborn dried blood-spot screening, early hearing detection and intervention, immunizations, and vital registration.
Perspectives on Integrating Child Health Information Systems: Parents, Providers, and Public Health,
Scott D. Williams and William Hollinshead
This article describes how a successful integrated child health information system will require a strong commitment from these 3 stakeholder groups and attention to human values as well as technical challenges.
All Kids Count Connections: A Community of Practice on Integrating Child Health Information Systems,
Ellen L. Wild, Patricia A. Richmond, Louis de Merode, and John D. Smith
This article describes the All Kids Count community of practice called Connections and how it brings together 11 state and local public health agencies to learn from each other, capture best practices, and collaboratively address challenges.
Assessing What Child Health Information Systems Should Be Integrated: The Michigan Experience,
Therese Hoyle and Robert Swanson
The project described in this article examined which child health data would be appropriate and useful to integrate with an existing real-time Michigan Department of Community Health application, such as the Michigan Childhood Immunization Registry.
Integrating the New York Citywide Immunization Registry and the Childhood Blood Lead Registry,
Vikki Papadouka, Paul Schaeffer, Amy Metroka, Andrew Borthwick, Parisa Tehranifar, Jessica Leighton, Angel Aponte, Ruron Liao, Alexandra Ternier, Stephen Friedman, and Noam Arzt
This article describes how a modular approach, called Master Child Index, was used to integrate the New York City Department of Health and Mental Hygiene’s childhood immunization and the blood lead test registry databases.
The Indiana Network for Patient Care: An Integrated Clinical Information System Informed by Over Thirty Years of Experience,
Paul G. Biondich and Shaun J. Grannis
This article presents the Indiana Network for Patient Care, an integrated citywide medical record system that promotes health quality by enabling efficient access to clinical information.
A Convocation of Wizards: Synergies at the Intersection of Child Health Care, Public Health, and Information Technology,
Richard N. Shiffman
This article describes a vision of health care with obstacles removed: experts should work to diminish the insularity that interferes with effective collaboration, focus on the intersection of child health, public health and information technology, and recognize and promulgate the message that one-size technology solutions that are designed for adult medicine do not fit this area of practice.
A Vision for Child Health Information Systems: Developing Child Health Information Systems to Meet Medical Care and Public Health Needs,
Alan R. Hinman, Kristin N. Saarlas, and David A. Ross
This article describes the recommendations that emerged from the December 2003 All Kids Count conference, “Developing Child Health Information Systems to Meet Medical Care and Public Health Needs.”
The Near-Term Future for Child Health Information Systems,
David A. Ross, Alan R. Hinman, Kristin N. Saarlas, Michele A. Lloyd-Puryear, and Stephen J. Downs
This article presents an argument for consideration of the multiple perspectives of the partners responsible for the health protection and health care of children as information infrastructure is developed. It presents five tasks for guiding thinking about near-term information systems integration.